|Love this bright, smiling face!|
|Enjoying reading books with Daddy|
While Aubree was intubated for so long, she couldn't talk because air was being inhaled and exhaled from her lungs through a breathing tube. Without air passing by the vocal cords, she couldn't make any sounds. This was especially scary for us at times because she could be silently crying, and we not know about it because there was no sound. After she was extubated, Aubree was still silent for many days. One night, after she had been extubated for a few days, she went to "talk" and sound came out. The look of surprise and joy on her sweet face was priceless! She literally talked for two hours nonstop, saying all the words she knew, mimicking what I was saying, and babbling away. We praise God for her voice coming back, as long term intubation can cause damage to vocal cords. Praise God for restoring what was lost! It is such a joy to hear her talk, and we literally celebrate every time she talks with cheers for Aubree. The words she says consistently are: hi, bye, Da for dad, uh-uh (meaning no, like if someone puts the stethoscope on her and she wants it off), her own version of Amber, and Papa sometimes. She also babbles many sounds and has started making kissing sounds back to those kissing at her, usually on video calls on the phone. When her Daddy is gone, I will ask her if she wants to call daddy. Aubree starts saying "Hi, Da," when I ask her and keeps saying it until I get him on the phone. This girl loves her Daddy!
|Sorting shapes with Daddy|
|Talking on the phone|
Aubree is also enjoying getting to eat baby food again! We try to squeeze in 1-2 sessions with baby food a day. So far, she has had applesauce, peas, pears, and peaches and loved everyone of them. She continues to eat as long as it is fun, then moves on to playing something else since she isn't truly hungry from having continuous feeds running all day through the feeding tube down her nose. We are hoping to get her transitioned to feeds back to her gtube and by mouth so that we can get rid of the tube down her nose. The one down her nose goes past the stomach into the intestine because when food is put in the intestine instead of in the stomach, it should not be able to be vomited. Aubree was struggling having wretching and sometimes vomiting episodes, usually related to the her getting medicine. We have started giving her medicines extremely slowly and this has resolved that issue. Praise the Lord for resolution! Once we get this under control, it will be safe for her to have larger volumes of feed in her belly besides just baby food.
|Eating yummy baby food and helping feed herself|
While Aubree has a jumper at home, she definitely needed one here at the hospital to help her bear weight on her legs and get her in more of a standing position. We got reminded of her needed a jumper here at the hospital from seeing Aubree's buddy Madden in one at the hospital in Florida and ordered one that night. She has LOVED having the independence of the jumper again! It is also great for her to work on reaching above her head since some of the toys attached to the jumper are taller.
|Loving having Aunt Amber here for a few weeks!|